TBT - Blog Style!

A dear blogging friend, started doing Throw Back Thursdays on her blog.  It seemed like a good idea.  I actually had a few good blogs before anyone read me and I've been in a bit of a funk lately and I haven't written much so it seemed like a good match.

This is a blog post I originally wrote about Alan's picky eating on January 14, 2013.  It was sort of sad to re-read it and realize how little has changed in those 16 months.  Then when I went looking for a picture (and you can tell it is recent since it is in the new kitchen) you can see all the foods I list later at his spot -- with the mini Fudge Stripes in a little row! 

Oh well, the kid still makes me laugh.

Picky Eaters 

 

While I'm sure every parent thinks they have picky eaters, I strongly suspect (and would probably be willing to bet upwards of $100) that Alan tops 99% of your children!

Many kids on the spectrum are on limited diets -- the most common of which is the gluten free-casein free (no wheat or milk products) diet.  We had Alan tested for wheat and milk allergies when we tried the biomedical treatments and the results were that he was moderately allergic to milk but not at all allergic to wheat.  So we tried to eliminate milk from his diet.  The only problem with that was that milk was the only source of protein in his entire diet.  We tried rice and soy and he wouldn't drink them.  He has never let us put flavoring of any sort in his milk so we couldn't even try to hide the flavor in chocolate milk.  Score:  Alan 1, Parents 0

We next tried to eliminate lactose from his diet.  This did work.  Dairy Ease or Lactaid both taste close enough to regular milk that we can get him to drink those with relative ease.  This seemed to end his chronic (albeit intermittent) diarrhea.  Alan 1, Parents 1

We took him to "picky eaters" food class near home.  This was at a local organization that was specifically for children with autism.  He lasted two classes before the OT asked us to please not bring him back.  Alan 2, Parents 1

Next we tried taking him to a local OT center that specializes in sensory problems and has several people that deal specifically with broadening a child's palette.  The entire center has supposedly done wonders for so many local kids.  We had three different OTs work with Alan for almost a year (driving 20-30 minutes each way) and all they managed was to get him to touch certain undesired foods to his tongue.  He would not go the further step of holding the food in his mouth and they (somewhat reluctantly) admitted defeat.  Alan 3, Parents 1

"So what does he drink?" you might ask.  If left to his own devices he would only drink soda.  Sigh.  So we give him a small cup of soda and an equal sized cup of lactose free milk.  He usually drinks the soda and the milk sits on the table until he wants more soda and then he will finally drink the milk.  Sigh.  I am not sure who wins in this one so we will keep the score the same.  Alan 3, Parents 1

"So what does he eat?" you might ask.  Basically we give him four foods at a time.  

• a favorite (either Oreo cookies, a Poptart with the edges broken off or a cereal bar which we had to stop giving him when we finally figured out that the only kind he would eat were Cinnamon Toast Crunch milk and cereal bars and that was causing problems)
• a fruit -- usually apples but occasionally he will let us give him purple seedless grapes (no green or even red)
• a bowl of something -- white cheddar or cheese popcorn, corn puffs, rice cakes (cheddar or ranch only) Cocoa Puffs or Honey Nut Cheerios
• animal crackers

And that is it.  He eats those same things all day, every day and has for the last 2-3 years.  There is no protein in his diet other than the milk.  We started including the animal crackers simply as a "break food".  He would eat the favorite food until he was as wide as he is tall so we added the animal crackers on to the plate so he would be forced to eat something he doesn't really like to slow him down or provide a break.  Again, I'm not sure who wins that round so we will call it a tie.  Alan 3, Parents 1

What about when we go out to eat?  He will eat French fries and he will drink soda and that is it.  Alan 4, Parents 1

What about vitamins or supplements?  We had him on Juice Plus for several years.  He took the gummies quite willingly for a long time.  Then he started pushing them to the back of his throat and gagging himself with them and we had to take him off them.  Luckily we did have a wonderful SLP a few years ago that taught him how to swallow pills.  In fact, he is the best in the family now at swallowing pills.  He will put his entire fist of medicine in his mouth and then chug a glass of water and they all go down.  Another tie.  Alan 4, Parents 1

Several experts in the field have told me that no child will starve themselves to death and that is probably true.  However, when the alternative is to have a knock down, drag out fight with an incredibly stubborn young man who can make the whole house miserable -- is it really so awful that he eats popcorn for breakfast?