Showing posts with label biomedical. Show all posts
Showing posts with label biomedical. Show all posts

Thursday, June 12, 2014

Writer's block

I have a really bad case of creativity block.

Some of this is certainly the fact that summer is here.  I have never been a big fan of warm weather.  Alan is home more and DH is currently on a business trip.  Sigh.

I haven't done much recently with my minis.

I've hardly even cooked much in my new kitchen.

I haven't written anything recently on this blog of which I am particularly happy.  Father's Day is coming up and I haven't even written a good tribute to DH.

So, since today is Thursday, I will take advantage of TBT and re-run my tribute from last year which is probably one of my all time favorite posts anyway.  So Happy Father's Day, DH!

Happy Father's Day, DH!

As regular readers know, I do not refer to my hubby by name, merely as DH.  Lest anyone be confused that does stand for Dear Husband NOT D*%# Husband.
The young and the clueless

DH and I met some 25 years ago and it wasn't exactly love at first sight.  We both thought the other had some goofy traits -- I was concerned about silly things like whether or not his clothes matched (they didn't) and he thought I needed to grow up (I did).  Obviously we did eventually reconcile these little problems.

So fast forward some seven years to Joe's birth.  I know that DH and I were terrified.  I would be hard pressed to say who was more so.  We were both the youngest in our family and although we both had nieces, we really had very limited experience with kids in general and babies in particular.  

We both have a vivid memory of leaving the hospital, getting out to the car with Joe and wondering how the heck did we get the car seat in the car?!?!?!   I am positive that he was not properly restrained for that first short drive.  Then there were diapers.  I think I had changed a grand total of two diapers before Joe was born and I'm pretty sure DH hadn't even changed that many.




I'm sure anyone who has ever cared for a newborn remembers that dreaded "transition" diaper.  That's the one with the consistency, color and smell of rancid tar.  We got Joe's at about 3 in the morning on his first night home.  While trying to clean it up (which took two of us) we were both christened along with the wall and floor of Joe's room -- ah, the special joys of little boys.  I was in so much pain from trying to breastfeed and a difficult birth that all I wanted to do was cry but DH just laughed which made me laugh and like so many things that would come later, he helped me get through.

Joe wasn't always an easy baby.  He would make himself go rigid and thrash like there was no tomorrow, but like many with autism he was the world's cutest toddler.  However, he only had about 10 words until he was almost 3 when we started our own version of ABA so he was definitely a challenge!

DH was always fantastic about coming with me to doctor after doctor and school meeting after school meeting.  I remember when we had home ABA with Joe and DH would make it to most of the team meetings.  Our ABA coordinator told us she didn't even know what most of the dads looked like and here was DH sitting in and contributing in most of the meetings. 

He would take Joe to the pool, the playground and even built a swing-set for him.  (And 14 years later, that swing-set is still in use by the younger child.)  But Dad and Joe are still pals and play tennis, chess and go for bike rides.

But I think what I like best about DH as a father is that he was never upset about the fact that Joe didn't play conventional sports.  We tried both t-ball and soccer when he was younger and they were complete disasters.  But it was never an issue.  I know so many guys that want to live vicariously through their male off-spring and DH was never that way.  He happily took Joe to gymnastics and later piano and bowling.  He taught him how to play tennis and we both taught him to ride a bike (with DH doing more of the running than yours truly!)

He also liked just relaxing and being silly with Joe.

Although he had a little denial before Joe was diagnosed he probably had less than me with Alan.  I was just convinced that lightning did NOT strike twice.  Alan was such a different baby than Joe -- cuddly, amazing eye contact, lots more babbling -- that I did not think he could possibly have autism. 

But once again, with DH's fantastic sense of humor and help, we got through all the sleepless nights, the poop smearing, the B-12 shots in Alan's butt while he slept, the bizarre climbing, the endless "Alan-proofing" of the basement, etc.  

The poor guy even has allergies but when Joe wanted a cat, DH said sure. 

And DH still has some of the ickier jobs with the boys.  He usually ends up taking Alan to the sedation dentist because it takes two males (DH and the doc) along with three nurses to hold him down and give him the initial shot.

And through all this, he remains my best friend and the person most likely to make me laugh.  Overall I couldn't ask for a better husband or Dad to my boyz!  

Love you, babe!

Thursday, May 22, 2014

TBT - Blog Style!

A dear blogging friend, started doing Throw Back Thursdays on her blog.  It seemed like a good idea.  I actually had a few good blogs before anyone read me and I've been in a bit of a funk lately and I haven't written much so it seemed like a good match.

This is a blog post I originally wrote about Alan's picky eating on January 14, 2013.  It was sort of sad to re-read it and realize how little has changed in those 16 months.  Then when I went looking for a picture (and you can tell it is recent since it is in the new kitchen) you can see all the foods I list later at his spot -- with the mini Fudge Stripes in a little row! 

Oh well, the kid still makes me laugh.

Picky Eaters 

 

While I'm sure every parent thinks they have picky eaters, I strongly suspect (and would probably be willing to bet upwards of $100) that Alan tops 99% of your children!

Many kids on the spectrum are on limited diets -- the most common of which is the gluten free-casein free (no wheat or milk products) diet.  We had Alan tested for wheat and milk allergies when we tried the biomedical treatments and the results were that he was moderately allergic to milk but not at all allergic to wheat.  So we tried to eliminate milk from his diet.  The only problem with that was that milk was the only source of protein in his entire diet.  We tried rice and soy and he wouldn't drink them.  He has never let us put flavoring of any sort in his milk so we couldn't even try to hide the flavor in chocolate milk.  Score:  Alan 1, Parents 0

We next tried to eliminate lactose from his diet.  This did work.  Dairy Ease or Lactaid both taste close enough to regular milk that we can get him to drink those with relative ease.  This seemed to end his chronic (albeit intermittent) diarrhea.  Alan 1, Parents 1

We took him to "picky eaters" food class near home.  This was at a local organization that was specifically for children with autism.  He lasted two classes before the OT asked us to please not bring him back.  Alan 2, Parents 1

Next we tried taking him to a local OT center that specializes in sensory problems and has several people that deal specifically with broadening a child's palette.  The entire center has supposedly done wonders for so many local kids.  We had three different OTs work with Alan for almost a year (driving 20-30 minutes each way) and all they managed was to get him to touch certain undesired foods to his tongue.  He would not go the further step of holding the food in his mouth and they (somewhat reluctantly) admitted defeat.  Alan 3, Parents 1

"So what does he drink?" you might ask.  If left to his own devices he would only drink soda.  Sigh.  So we give him a small cup of soda and an equal sized cup of lactose free milk.  He usually drinks the soda and the milk sits on the table until he wants more soda and then he will finally drink the milk.  Sigh.  I am not sure who wins in this one so we will keep the score the same.  Alan 3, Parents 1

"So what does he eat?" you might ask.  Basically we give him four foods at a time.  

  • a favorite (either Oreo cookies, a Poptart with the edges broken off or a cereal bar which we had to stop giving him when we finally figured out that the only kind he would eat were Cinnamon Toast Crunch milk and cereal bars and that was causing problems)
  • a fruit -- usually apples but occasionally he will let us give him purple seedless grapes (no green or even red)
  • a bowl of something -- white cheddar or cheese popcorn, corn puffs, rice cakes (cheddar or ranch only) Cocoa Puffs or Honey Nut Cheerios
  • animal crackers
And that is it.  He eats those same things all day, every day and has for the last 2-3 years.  There is no protein in his diet other than the milk.  We started including the animal crackers simply as a "break food".  He would eat the favorite food until he was as wide as he is tall so we added the animal crackers on to the plate so he would be forced to eat something he doesn't really like to slow him down or provide a break.  Again, I'm not sure who wins that round so we will call it a tie.  Alan 3, Parents 1

What about when we go out to eat?  He will eat French fries and he will drink soda and that is it.  Alan 4, Parents 1

What about vitamins or supplements?  We had him on Juice Plus for several years.  He took the gummies quite willingly for a long time.  Then he started pushing them to the back of his throat and gagging himself with them and we had to take him off them.  Luckily we did have a wonderful SLP a few years ago that taught him how to swallow pills.  In fact, he is the best in the family now at swallowing pills.  He will put his entire fist of medicine in his mouth and then chug a glass of water and they all go down.  Another tie.  Alan 4, Parents 1

Several experts in the field have told me that no child will starve themselves to death and that is probably true.  However, when the alternative is to have a knock down, drag out fight with an incredibly stubborn young man who can make the whole house miserable -- is it really so awful that he eats popcorn for breakfast?

Friday, June 14, 2013

Happy Father's Day, DH!

As regular readers know, I do not refer to my hubby by name, merely as DH.  Lest anyone be confused that does stand for Dear Husband NOT D*%# Husband.
The young and the clueless

DH and I met some 25 years ago and it wasn't exactly love at first sight.  We both thought the other had some goofy traits -- I was concerned about silly things like whether or not his clothes matched (they didn't) and he thought I needed to grow up (I did).  Obviously we did eventually reconcile these little problems.


So fast forward some seven years to Joe's birth.  I know that DH and I were terrified.  I would be hard pressed to say who was more so.  We were both the youngest in our family and although we both had nieces, we really had very limited experience with kids in general and babies in particular.  

We both have a vivid memory of leaving the hospital, getting out to the car with Joe and wondering how the heck did we get the car seat in the car?!?!?!   I am positive that he was not properly restrained for that first short drive.  Then there were diapers.  I think I had changed a grand total of two diapers before Joe was born and I'm not sure DH had even changed that many.



I'm sure anyone who has ever cared for a newborn remembers that dreaded "transition" diaper.  That's the one with the consistency, color and smell of rancid tar.  We got Joe's at about 3 in the morning on his first night home.  While trying to clean it up (which took two of us) we were both christened along with the wall and floor of Joe's room -- ah, the special joys of little boys.  I was in so much pain from trying to breastfeed and a difficult birth that all I wanted to do was cry but DH just laughed which made me laugh and like so many things that would come later, he helped me immensely.

Joe wasn't always an easy baby.  He would make himself go rigid and thrash like there was no tomorrow.  But like many with autism he was the world's cutest toddler.  But he only had about 10 words until he was almost 3 when we started our own version of ABA so he was definitely a challenge!

DH was always fantastic about coming with me to doctor after doctor and school meeting after school meeting.  I remember when we had home ABA with Joe and DH would make it to most of the team meetings.  Our ABA coordinator told us she didn't even know what most of the dads looked like and here was DH sitting in and contributing in most of the meetings. 

He would take Joe to the pool, the playground and even built a swing-set for him.  (And 14 years later, that swing-set is still in use by the younger child.)  But Dad and Joe are still pals and play tennis, chess and go for bike rides.

But I think what I like best about DH as a father is that he was never upset about the fact that Joe didn't play conventional sports.  We tried both t-ball and soccer when he was younger and they were complete disasters.  But it was never an issue.  I know so many guys that want to live vicariously through their male off-spring and DH was never that way.  He happily took Joe to gymnastics and later piano and bowling.  He taught him how to play tennis and we both taught him to ride a bike (with DH doing more of the running than yours truly!)


He also liked just relaxing and being silly with Joe.

Although he had a little denial before Joe was diagnosed he probably had less than me with Alan.  I was just convinced that lightning did NOT strike twice.  Alan was such a different baby than Joe -- cuddly, amazing eye contact, lots more babbling -- that I did not think he could possibly have autism. 

But once again, with DH's fantastic sense of humor and help, we got through all the sleepless nights, the poop smearing, the B-12 shots in Alan's butt while he slept, the bizarre climbing, the endless "Alan-proofing" of the basement, etc.  

The poor guy even has allergies but when Joe wanted a cat, DH said sure. 

And DH still has some of the ickier jobs with the boys.  He usually ends up taking Alan to the sedation dentist because it takes two males (DH and the doc) along with three nurses to hold him down and give him the initial shot.

And through all this, he remains my best friend and the person most likely to make me laugh.  Overall I couldn't ask for a better husband or Dad to my boyz!  

Love you, babe!




Monday, January 14, 2013

Picky Eaters

While I'm sure every parent thinks they have picky eaters, I strongly suspect (and would probably be willing to bet upwards of $100) that Alan tops 99% of your children!

Many kids on the spectrum are on limited diets -- the most common of which is the gluten free-casein free (no wheat or milk products) diet.  We had Alan tested for wheat and milk allergies when we tried the biomedical treatments and the results were that he was moderately allergic to milk but not at all allergic to wheat.  So we tried to eliminate milk from his diet.  The only problem with that was that milk was the only source of protein in his entire diet.  We tried rice and soy and he wouldn't drink them.  He has never let us put flavoring of any sort in his milk so we couldn't even try to hide the flavor in chocolate milk.  Score:  Alan 1, Parents 0

We next tried to eliminate lactose from his diet.  This did work.  Dairy Ease or Lactaid both taste close enough to regular milk that we can get him to drink those with relative ease.  This seemed to end his chronic (albeit intermittent) diarrhea.  Alan 1, Parents 1

We took him to "picky eaters" food class near home.  This was at a local organization that was specifically for children with autism.  He lasted two classes before the OT asked us to please not bring him back.  Alan 2, Parents 1

Next we tried taking him to a local OT center that specializes in sensory problems and has several people that deal specifically with broadening a child's palette.  The entire center has supposedly done wonders for so many local kids.  We had three different OTs work with Alan for almost a year (driving 20-30 minutes each way) and all they managed was to get him to touch certain undesired foods to his tongue.  He would not go the further step of holding the food in his mouth and they (somewhat reluctantly) admitted defeat.  Alan 3, Parents 1

"So what does he drink?" you might ask.  If left to his own devices he would only drink soda.  Sigh.  So we give him a small cup of soda and an equal sized cup of lactose free milk.  He usually drinks the soda and the milk sits on the table until he wants more soda and then he will finally drink the milk.  Sigh.  I am not sure who wins in this one so we will keep the score the same.  Alan 3, Parents 1

"So what does he eat?" you might ask.  Basically we give him four foods at a time.  
  • a favorite (either Oreo cookies, a Poptart with the edges broken off or a cereal bar which we had to stop giving him when we finally figured out that the only kind he would eat were Cinnamon Toast Crunch milk and cereal bars and that was causing problems)
  • a fruit -- usually apples but occasionally he will let us give him purple seedless grapes (no green or even red)
  • a bowl of something -- white cheddar or cheese popcorn, corn puffs, rice cakes (cheddar or ranch only) Cocoa Puffs or Honey Nut Cheerios
  • animal crackers
And that is it.  He eats those same things all day, every day and has for the last 2-3 years.  There is no protein in his diet other than the milk.  We started including the animal crackers simply as a "break food".  He would eat the favorite food until he was as wide as he is tall so we added the animal crackers on to the plate so he would be forced to eat something he doesn't really like to slow him down or provide a break.  Again, I'm not sure who wins that round so we will call it a tie.  Alan 3, Parents 1

What about when we go out to eat?  He will eat French fries and he will drink soda and that is it.  Alan 4, Parents 1

What about vitamins or supplements?  We had him on Juice Plus for several years.  He took the gummies quite willingly for a long time.  Then he started pushing them to the back of his throat and gagging himself with them and we had to take him off them.  Luckily we did have a wonderful SLP a few years ago that taught him how to swallow pills.  In fact, he is the best in the family now at swallowing pills.  He will put his entire fist of medicine in his mouth and then chug a glass of water and they all go down.  Another tie.  Alan 4, Parents 1

Several experts in the field have told me that no child will starve themselves to death and that is probably true.  However, when the alternative is to have a knock down, drag out fight with an incredibly stubborn young man who can make the whole house miserable -- is it really so awful that he eats popcorn for breakfast?