tag:blogger.com,1999:blog-6942900775029495748.post7549649264084555617..comments2023-07-07T04:22:53.365-06:00Comments on Julie's Boyz: Why the cure analogies are invalidAnonymoushttp://www.blogger.com/profile/13601329296517304013noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-6942900775029495748.post-7699325241222373302014-08-28T07:04:30.748-05:002014-08-28T07:04:30.748-05:00Thanks, Jonathan. That is what I was trying to ex...Thanks, Jonathan. That is what I was trying to express. We are all different. Also not all autistics are alike. I just get so unbelievably frustrated when adult autistics tell me what my child must be thinking. I happen to believe and trust Joe when he tells me that it makes his life more difficult. If he outgrows that desire for a cure and grows into his autistic self, I will be fine with that, too. As you say, the point is moot but I get so frustrated when adult autistics jump on my case for wanting a cure. My boyz are NOT them.Anonymoushttps://www.blogger.com/profile/13601329296517304013noreply@blogger.comtag:blogger.com,1999:blog-6942900775029495748.post-11491581167670240862014-08-27T21:23:26.031-05:002014-08-27T21:23:26.031-05:00I'm an individual with autism who wishes there...I'm an individual with autism who wishes there were a cure. I would like it for myself and anyone else who wishes to be cured. I'm not interested in forcing a cure on autistic adults above the age of consent who do not want one. In the same vein, they should respect my wishes and not hassle me, other adults, and parents of kids who want a cure. I realize this statement may be moot as there is no cure available and probably won't be in my lifetime (particularly at my advanced age) but that is how I feel. jonathanhttps://www.blogger.com/profile/14972394536850151087noreply@blogger.comtag:blogger.com,1999:blog-6942900775029495748.post-38499952186305171732014-08-26T04:21:26.651-05:002014-08-26T04:21:26.651-05:00This comment has been removed by a blog administrator.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6942900775029495748.post-15110729037236006952014-08-24T17:21:27.222-05:002014-08-24T17:21:27.222-05:00Well that makes perfect sense to me, Flutist. :-)...Well that makes perfect sense to me, Flutist. :-) Thanks for reading.Anonymoushttps://www.blogger.com/profile/13601329296517304013noreply@blogger.comtag:blogger.com,1999:blog-6942900775029495748.post-2480132511044295162014-08-24T09:43:34.353-05:002014-08-24T09:43:34.353-05:00I am autistic and I like it that way. Some people ...I am autistic and I like it that way. Some people do not, but I do. I do not mind the desire for a cure as much as I mind the pity-filled motives to find a cure. Anonymoushttps://www.blogger.com/profile/10616282351291824392noreply@blogger.comtag:blogger.com,1999:blog-6942900775029495748.post-57681689653874781702014-08-24T00:44:17.266-05:002014-08-24T00:44:17.266-05:00Well said. I believe everyone wants to be able to...Well said. I believe everyone wants to be able to live independently, make a living wage and form deep relationships. If they can do that with autism, I haven't the slightest problem with autistic people remaining autistic. For many, autism puts these basic quality of life issues out of reach. How can anyone suggest that we shouldn't want to keep that from happening? If you're against a cure, you don't need one. Shantihttps://www.blogger.com/profile/11323636965254272203noreply@blogger.comtag:blogger.com,1999:blog-6942900775029495748.post-47763187112473018482014-08-22T22:31:30.924-05:002014-08-22T22:31:30.924-05:00If there was a cure for all the suffering, anxiety...If there was a cure for all the suffering, anxiety, ocd, anger, aggression, and violence that Bethany goes through I would give it to her in a heartbeat. She does not enjoy being miserable like that. No one does. If Bethany could, I know she would tell me she'd like to be cured- at least from these symptoms.Sylviahttps://www.blogger.com/profile/11728106748390605243noreply@blogger.comtag:blogger.com,1999:blog-6942900775029495748.post-18315777672772179712014-08-22T13:46:13.882-05:002014-08-22T13:46:13.882-05:00Caylee, I do NOT dismiss adult autistics views in ...Caylee, I do NOT dismiss adult autistics views in the slightest. While I am not autistic I do understand their identifying with that aspect. But isn't it more like a transgender issue? Most people accept and identify with their birth gender. But it isn't fair when the vocal majority act like the other point of view isn't valid. If Joe were to tell me he is happy being autistic, I would be fine with that. If Alan (my non-verbal child) were to come up with a way to tell me he is happy as he is, then I would be ecstatic. <br /><br />My point is that it is mostly those people with milder autistic co-morbids (flapping, poor eye contact, social skills impairment) that do not want a cure. There ARE adult autistics out there that still wish there was a cure. I suspect they are the ones with the more debilitating co-morbids. <br /><br />I just wish the vocal majority (those that do not wish for a cure) would acknowledge that not everyone is the same. I don't think anyone should be forced to be "cured" (as if that is even possible) but I resent when people tell me that wanting more for my child than probable institutionalization is not accepting of him. <br /><br />I can't just accept that my beautiful child is destined to never be able to live on his own or communicate meaningfully with me.Anonymoushttps://www.blogger.com/profile/13601329296517304013noreply@blogger.comtag:blogger.com,1999:blog-6942900775029495748.post-64948261194204203002014-08-22T12:56:07.322-05:002014-08-22T12:56:07.322-05:00I think you mischaracterized the comparison.
The ...I think you mischaracterized the comparison.<br /><br />The religious extremist parent who truly wants her son ‘cured’ from being gay is the one with the issue about homosexuality. Just like the parent of a deaf kid wants her girl ‘cured’ of deafness.<br /><br />What the parent sees as their kid’s greatest tragedy (gayness, deafness), the kid more than likely sees as his/her identity.<br /><br />You’ve got a verbal kid on the spectrum, who has expressed a preference to not be autistic (or for a way to better manage the side effects of his autism that he finds debilitating). You’re right, there’s no conflict.<br /><br />However, there are a ton of adults on spectrum who insist they were very much like your boys as kids… and who came into their own as they got older. So it’s probably worth taking the views of the folks who’ve ‘been there’ (as kids on the spectrum) in a way that you haven’t (as you’re not on the spectrum).<br /><br />This ‘divide’ reminds me a lot of the gap in understanding/empathy between potential adoptive parents / adoptive parents of kids who are still little and those of adult adoptees. The adoptive parents tend to write the adult adoptees off as ‘angry’, that their (still little) adopted kids will never, ever grow up to be like that. <br />Katehttps://www.blogger.com/profile/14075630681598355493noreply@blogger.comtag:blogger.com,1999:blog-6942900775029495748.post-58933993840686531642014-08-22T12:08:39.750-05:002014-08-22T12:08:39.750-05:00Yes, I love Zeke and William very much but if I co...Yes, I love Zeke and William very much but if I could make life easier for them, I certainly would. That is the heart of any parent I hope. Love reading about your ideas and thoughts! Blessings!Anonymoushttps://www.blogger.com/profile/06941712767626451024noreply@blogger.comtag:blogger.com,1999:blog-6942900775029495748.post-918526262786417872014-08-22T12:04:45.920-05:002014-08-22T12:04:45.920-05:00This makes perfect sense to me xxThis makes perfect sense to me xxLooking for Blue Skyhttps://www.blogger.com/profile/09967209809039641493noreply@blogger.com